That is the next time Randy goes to see his neurosurgeon (barring any emergencies). His appointment went well. His scan looked good and I had it put on CD just in case we go out of town or have to go to a closer hospital in an emergency.
The doctor and nurses were so pleased to see how well he is doing. The doc was impressed with his talking, alertness and development. Remember that this is the same doctor who said he'd never go to a regular school. Despite that comment, I still like him. I feel he has tried to make the best decisions for Randy and kept a great balance between being aggressive in his care and reckless.
His growth was fantastic!!! He weighs 26 lbs and is 33.75 inches long. Can you believe that? I was floored. His head has not grown though. It is still 45 cm. That is 6 months with no growth. The neurosurgeon says that it is not uncommon for kids with hydrocephalus to have small heads (seems like an oxymoron doesn't it?) His skull closed early than most babies, therefore limiting some head growth. He wants the pediatrician to email him head measurements and the eye doctor to send him reports. If there is anything alarming, he will have me bring him in. He did not seem concerned; so neither will I (this time).
10 months ago